The Indo US Bridging RARE Summit, scheduled for Nov 16-18 2024 is based on the theme “Combating Rare Diseases by Fostering Cross-Border Collaborations, Data Sharing, and Clinical Trials” and promises to provide a unique program that will focus on cross-border collaborations and new perspectives from a broad spectrum of stakeholders of rare diseases. This prestigious event is hosted by the Indo US Organization for Rare Diseases in collaboration with the All India Institute of Medical Sciences, New Delhi.
The Summit will be conducted in-person at the Indian National Science Academy (INSA), New Delhi, India, and will be streamed live. The program is designed to be educational for all rare disease stakeholders, exchanging information regarding the resources, policy frameworks, programs, and expertise available in India and the US. Through the Summit, we intend to reach a diverse global audience that will include most stakeholders of rare diseases including patient advocates, caregivers, academic researchers, orphan drug developers, biopharmaceutical sponsors, clinical research organizations, and digital health industry, and others from the US and India.
The three-day Summit will feature a series of talks and panel discussions featuring leaders in the field of rare diseases from across the world, workshops, and ample networking opportunities. We are happy to announce Dr. David A Pearce (Chair, International Rare Disease Research Consortium (IRDiRC)) as our Opening Keynote, and Dr. Peter Marks (Director, CBER, FDA) as the Regulatory Keynote for the event. The Summit also features an evening Gala with a ceremony honoring high achievers in cross-border rare disease research and drug development with the Abbey Meyers Khushi Bridging RARE Award. The program will explore the challenges and potential solutions for rare diseases with a specific focus on cross-border collaborations to drive patient-focused drug development.
Why Join Us?
- Uniquely positioned to accelerate the engagement of the global rare disease community in Orphan Drug R&D.
- Highly informative and educational sessions led by experts in the field.
- Great opportunities to connect with industry leaders, researchers, and advocates.
- Special emphasis on India and emerging markets, highlighting their role in rare disease research and treatment.
- The event will take place in HYBRID mode, offering live streaming of sessions and an excellent online networking platform.
Themes:
- Cross-Border Patient Engagement
- Indo-US Contrast in Care Pathways: Screening, Diagnosis, and Treatment Options
- Data Privacy and Governance Across Borders
- Digitization of Rare Diseases – Registries, Emerging Markets
- Diversity, Equity, Inclusion, and Access (DEIA) & Globalization for Orphan Drugs
- Orphan Drug Clinical Trials
- Regulatory Pathways for Orphan Products
- Drug Repurposing and Generics for Rare Diseases
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Don’t miss this opportunity to be part of a transformative event that aims to shape the future of rare disease research and treatment on a global scale.
For more details, visit: https://summit.indousrare.org/ or write to [email protected]
Event Description received on mail.
Brands Review Magazine is a Media Partner for this event.
